i am runninnnggggg

Hi all. I am sorry that I haven't posted in the past few weeks. I have had so much going on... and Yes, my Piccline is out! yay!!! I will post about that this weekend. Here is a video of me running in Physical Therapy last week... my gait is still off and when I run my right leg turns in a little. I am having back and hip problems and my knee bothers me as well. I am SOO happy that I am walking that I will deal with the pain. :) I feel as if I almost have my life back... I am about  80-85% there!! :)

REMISSION???!!!!

So I got some great news today… My Piccline is coming out next Wednesday, June 20^th!!  As I mentioned on my previous post my 60 days on IV Rcocephin and IV Vancomycin was on Wednesday, June 6. After talking with my LLMD he wanted to extend me 30 more days on intravenous meds. His reason being that I am not 100% “me” again. Yes, I still have headaches, dizziness (which causes me to be nauseous), fatigue, joint pain, & neuropathy.. but I have definitely made improvements! I am now walking on my own, started reading books again, on the computer more, have better conversations, able to plan events.. etc.

I feel that part of me being sick has to do with the medicines that I am on. I was on 28 days of IV antibiotics in Aug/Sept. then on 70 days from March until present.. that is almost 100 days on IV antibiotics. On top on the IV meds. I am on oral azithromycin, Ceftin, Flaygl ( then switched to Tindamax), Duflucan, Neurotin, Celebrex, asprin, Samento, Banderyol..Plus many supplements. Overall, I personally think that my body needs a break. I have had blood clots, phlebitis and just want this picc out! Also, who knows the long term effects that my body may have from being on all of these antibiotics? I do have blood work done every Tuesday- overall everything comes back great! But sometimes I have had low red blood cells, high white blood cells.. overall it is just scary that we have to take all of these meds to get better but it could be damaging parts of our body. There is not one specific treatment plan that everyone should follow for Lyme Disease- everyone is different and should have different plans depending on their symptoms. Some people many only need 28 days (which I know that MOST need more- especially for Chronic Lyme) and I think every patient needs to be on a concoction of medications for to get to remission. I am grateful for the doctors that I have found –they were very aggressive!

So today I also met with my integrative medicine doctor.. and this was the FIRST time since I started going to him that he found that ALL my co-infections and my Lyme were cleared.. so that means he found that I am in REMISSION!!! Yay!! Finally!!!! It was wonderful news!!! I am actually in shock- b/c I do not feel 100%..

100%??? So after talking to my LLMD and my integrative medicine doctor it will take about 1-6 months for me to really see a difference. Once I am off these abx I will probably feel like poop and may get sick again.. Well, think about it.. my body is so use to being on abx that it has to learn to fight for itself again. I have been working on building up my immune system so hopefully it will pick up right away… only time will tell.

So.. here is goes… Next Wednesday we will see if I kicked this Lyme to the curb! Will I be “cured” sadly, NO.  I have Chronic Lyme Meningitis.. FOREVER… I will be in “remission” Could the Lyme become active again? Oh yes.. so what can I do to hopefully prevent this? I am going to start detoxing next week by taking pills, baths, drinks.. we will see. Also, eating healthy and exercising. Now that I am able to walk somewhat again.. I need to push myself. I can do it—I know it!

Sadly, right now I have had the worst back pain, hip pain, pelvis pain. I found that since my body was at rest for so long and now I am walking again my pelvis is off alignment and it is causing pain. I am going to talk to my PT tomorrow to discuss going to a chiropractor. This pain is terrible and is not helping the other pain that I am having… so we will see.

So I am going to be positive.. stopping antibiotics and helping my body heal naturally.. Hopefully stopping sooner than later will be a good thing for me.. Prayers are welcomed! I am hoping to go back to teaching preschool disabled in the September- I miss my class, I miss my life… here is to my new life & being grateful for the good days and dealing with the flare ups.. I will be patient & have accepted and that this is my new life- I hope all my family/friends can accept it and be patient too..  Thank you for ALL of your support.. I am blessed <3 

thank goodness Tindamax is done today!!

Didn't feel too well to type so here is a blog video of me today. Thanks for all of your support and Let's Raise Awareness!! :)