tag:blogger.com,1999:blog-79025730733561265352024-03-10T12:13:19.484-07:00Samantha's Lyme LifeSamanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.comBlogger53125tag:blogger.com,1999:blog-7902573073356126535.post-86882238083528483832016-01-01T20:07:00.002-08:002016-01-01T20:08:00.511-08:00Happy 2016 š<span style="font-size: large;">Happy New Year! I know- it has been a LONG time since I have written on my blog and I apologize for that. Good news- I am still in remission! I still do see my Intergrative Medicine Dr about every 6-8 weeks for check ups but all is good! Here is a quick update on me:)</span><br />
<span style="font-size: large;">February 16th we welcomed a HEALTHY beautiful baby girl named Madeline into our lives- she is our true little blessing! I did nurse her until about July when I wasn't feeling so well.. I felt Lymey ( as some of us call it) again. I did go to my Dr and I was right- it was back! Not bad bad like before but it was picked up. I stopped breastfeeding to go on medicine and also because some research has shown that the Lyme can be in the Breastmilk- is that true? I don't know at all.. But just to be safe, I stopped. After some light treatment from my Intergrative Medicine Dr I felt great again by October and am still in remission! My daughter is now 22 months old and we are expecting our 2nd baby this June 2016!! I hope that this can bring positive news to all going through this battle with Lyme. 2011& 2012 I fought to get my life back by being very aggressive on medicine, support of family and friends, staying positive and of course having faith. I am now going to be a mommy of 2 and I am a full time teacher. I say all of this to help those fighting to not give up- your dreams will come true and just show this Lyme who is boss!! You got this!! </span><br />
<span style="font-size: large;">I can not access my FB page for some reason because I had my name under Samantha Lymelife and they now want identification ( well obviously that is not my real name so I do not have identification) so I will hopefully figure this out. Again, I'm sorry to getting back to all the emails and comments SO late! Wishing you all a happy and healthy 2016! </span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com2tag:blogger.com,1999:blog-7902573073356126535.post-87353499295575951462013-11-20T17:29:00.002-08:002013-11-20T17:29:16.473-08:00Our Blessing.. 2/2014<span style="font-family: Georgia; font-size: large;"> I am so sorry that I have not written on here in such a long time! So much news to share! </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">First, I want to say that I am still in full remission! Yay!! I am feeling so blessed that I have not had to take any Lyme medications for a while now! I was on supplements but currently am on nothing!! It crazy to think back how many different things I was on before and now am on nothing! I see my integrative medicine Dr. every 4-6 weeks... he monitors me and all is well! Sometimes I look at my old videos and pictures and just can not believe how sick I was... Lyme stinks!! </span><br />
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<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">So what is new with me now. Well, I am back to teaching my preschool disabled class! I was out of this classroom for 2 years and am so grateful that I was about to go back! I love the class that I teach.. the best part is I am able to keep up and feel like "me" again! I will say I have SI joint instability now and degenerative disc disease in my lower back all from the Lyme and how I "walked" for that year.. but I will take that over everything else!!</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">So the best news of all..... I am expecting a little bundle of joy!!! The baby's due date is February 14, 2014- Valentine's Day- How sweet is that! Picture above is me 11 weeks pregnant! All I can do is thank God for giving me this blessing!! I really never thought this would happen for me after have Chronic Lyme- but it did! No, I am not on antibiotics. I figured since I am in remission why would I? I would go on them if Lyme is active. Baby is healthy and all is good.. I do take prenatal vitamins daily- but that is it!!! So there really is joy and light at the end of the tunnel after this terrible battle! Stay strong and positive you will get through this too!!! God is good and will bless us! Keep fighting and Let's Raise Awareness!!</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;"><3 Samantha</span> Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com4tag:blogger.com,1999:blog-7902573073356126535.post-59994777178727913792013-07-23T17:36:00.003-07:002013-07-23T17:36:26.520-07:00feeling good!<span style="font-size: large;">Hi All!</span><br />
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<span style="font-size: large;">Just wanted to give you an update! I am still in remission- yay!! I have been feeling wonderful. Yes, I have some joint pain or numbness here and there, but hey- I will take that over what I did have! I have come to learn that My Body will never be totally the way that it used to be and I have accepted that. I am so blessed to feel the way that I do now. I am back to teaching my preschool disabled class. I really couldn't have picked a better profession for myself. I am exhausted after 2 hours but its totally worth it. I enjoy every minute with those kids and I learn something new everyday!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">I want to let all of you who are fighting this terrible disease to stay positive! If you are negative I guarantee you will not get better. You need to love your body and stay positive and show this Lyme who is boss! Also, it helps you feel better mentally by staying positive. So yea you want to sleep all day- set your alarm and get up and try to do something for your self. I know- its is hard.. But with determination, positive thinking, and a good medicine concoction you will feel better- I promise!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">I have made so many friends across the world by having this blog. I email with them and we talk about about experiences. It is nice to talk to others who are feeling and going through what you are. If you ever need a friend please e-mail me </span><a href="mailto:samanthadawn1211@gmail.com"><span style="font-size: large;">samanthadawn1211@gmail.com</span></a><span style="font-size: large;">. I will listen, and give any advice that I may be able to give. </span><br />
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<span style="font-size: large;">Thinking of all my Lymies and Let's Raise Awareness!! ((HUGS))</span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com1tag:blogger.com,1999:blog-7902573073356126535.post-85214270938098530142013-06-26T13:44:00.001-07:002013-06-26T13:44:15.792-07:00mini interviewIn <strong>May 2012</strong> I did an interview with Clearview Regional High School About Lyme Disease. I just got the video sent to me. It is short but gets to the point. In this video I am still very sick with my piccline still in ( I am wearing a brown piccline cover over it), Bells Palsy, and lots of weight gain.... Here is the video: Let's Raise Awareness!!<br />
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<span id="goog_1077555909"></span><span id="goog_1077555910"></span><br />Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-10828787958776820112013-06-26T13:42:00.000-07:002013-06-26T13:42:01.463-07:00Thanks Pine Hill School District!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU0s5vcxCbVWJULmGN42XoAfnlG0wcbEJmQz6FTU98l0GG7lOhdFiYErVkEmEtBeMxxzc0BTRbhub_6N7wBbPHPaaG2f3ScNWRcdVLCzQmMotZYdbCgzHw-9g_lTqrf0ozjm5okwtag3A-/s1600/IMG_1731.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU0s5vcxCbVWJULmGN42XoAfnlG0wcbEJmQz6FTU98l0GG7lOhdFiYErVkEmEtBeMxxzc0BTRbhub_6N7wBbPHPaaG2f3ScNWRcdVLCzQmMotZYdbCgzHw-9g_lTqrf0ozjm5okwtag3A-/s320/IMG_1731.JPG" width="320" /></a></div>
The Bean Goes Green in May for Lyme Disease Awareness Month!!! Thank you so much to the Pine Hill School District for all of of your love and support! I am so lucky to work with such a great group of people! ( This is a picture of the Staff at the Dr. Albert Bean School, where I teach. I am the one in the middle holding the sign.)<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaX4H-0MGvofqR1VVS0_CQTE2x1Uc9Kk5wOBHTxPgYzp3hpnxjhsFEnhmgtPXzl5-RhllMyHx3i7-HNOqXpVoQQd467S8n9qdzHi9cvad5ezm4PhPmZ5Ap9bMd9yCD4DDuD6iYUlkM2P7g/s1600/IMG_1732.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaX4H-0MGvofqR1VVS0_CQTE2x1Uc9Kk5wOBHTxPgYzp3hpnxjhsFEnhmgtPXzl5-RhllMyHx3i7-HNOqXpVoQQd467S8n9qdzHi9cvad5ezm4PhPmZ5Ap9bMd9yCD4DDuD6iYUlkM2P7g/s320/IMG_1732.JPG" width="320" /></a></div>
My superintendent came to show his support as well! Thank you Dr. Koczur!<br />
I decorated the school office, handed out ribbons, and Lyme Disease brochures! Let's Raise Awareness!<br />
<br />Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-84516333828802340062013-04-28T09:18:00.001-07:002013-04-28T09:18:34.064-07:00May- Lyme Disease Awareness Month!!!
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<span style="font-family: Calibri;"><span style="font-size: x-large;"><span style="line-height: 115%; mso-bidi-font-family: Arial;"> MAY</span><span style="line-height: 115%; mso-bidi-font-family: Arial;">: </span><b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><u><span style="color: lime; line-height: 115%; mso-bidi-font-family: Arial;">Lyme Disease</span></u></i></b><span style="color: lime; line-height: 115%; mso-bidi-font-family: Arial;"> </span><span style="line-height: 115%; mso-bidi-font-family: Arial;">Awareness
Month!</span><span style="line-height: 115%; mso-bidi-font-family: Arial;"> </span><i style="mso-bidi-font-style: normal;"><span style="line-height: 115%;"></span></i></span></span></div>
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<span style="font-family: Calibri;"><span style="font-size: x-large;"><i style="mso-bidi-font-style: normal;"><span style="line-height: 115%;">Raising Awareness for this horrible disease is very
important. Here are a few ways that you can help:</span></i></span><span style="line-height: 115%;"> </span><span style="font-size: 36pt; line-height: 115%; mso-bidi-font-family: Arial;"><o:p></o:p></span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLs4EHFd8S516e9rIUOLDCcDoBiBZK5mWp4JlNOb_3W6MXKBM4KD7oOc8jUpq3FF-068EOKvF1O1sqe8kIPqadXGnDYFQKAl0_460WF33l1sJFQgWTacW6rBC_J_4HKcZ4LYJivhsJbcvo/s1600/47796_232182723589819_1134065728_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLs4EHFd8S516e9rIUOLDCcDoBiBZK5mWp4JlNOb_3W6MXKBM4KD7oOc8jUpq3FF-068EOKvF1O1sqe8kIPqadXGnDYFQKAl0_460WF33l1sJFQgWTacW6rBC_J_4HKcZ4LYJivhsJbcvo/s1600/47796_232182723589819_1134065728_n.jpg" /></a></div>
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<b style="mso-bidi-font-weight: normal;"><u><span style="color: lime; font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">"Samanthaās Projectā </span></u></b><i style="mso-bidi-font-style: normal;"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">Turn
your porch light green for the month of May! Help spread awareness by replacing
your porch or outdoor lights with a green bulb. Itās fun, easy and a cheap way
to bring attention to this nasty disease! <o:p></o:p></span></i></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">* Wear lime green the month of May : Shirts,
ribbons,bracelets, headbands, NAIL POLISH..etc.<o:p></o:p></span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">* Tie lime green ribbons around poles and trees<o:p></o:p></span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;"><o:p> </o:p></span><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">* Hand out Lyme Disease info cards: </span><a href="http://www.lymediseaseassociation.org/"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;"><span style="color: blue;">www.lymediseaseassociation.org</span></span></a><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">
under resources<o:p></o:p></span></div>
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<span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;">* Share on social networks to check for ticks and help
educate about Lyme Disease<o:p></o:p></span></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%;"><o:p> </o:p></span></i></b><b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%; mso-ansi-language: EN-US; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;">** To prevent <u><span style="color: lime;">Lyme Disease</span></u><span style="color: lime;"> </span>check
for ticks daily**</span></i></b></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%; mso-ansi-language: EN-US; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"></span></i></b> </div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%; mso-ansi-language: EN-US; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;">I will be adding information about Lyme Disease throughout the month of May. </span></i></b></div>
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<b style="mso-bidi-font-weight: normal;"><i style="mso-bidi-font-style: normal;"><span style="font-family: "Arial","sans-serif"; font-size: 14pt; line-height: 115%; mso-ansi-language: EN-US; mso-bidi-language: AR-SA; mso-fareast-font-family: Calibri; mso-fareast-language: EN-US; mso-fareast-theme-font: minor-latin;"><span style="color: lime;">To read my story please start from the beginning of this blog : Feb 2011 (I was diagnoised in August 2011) Thank you for reading and Let's Raise Awareness!!!</span></span></i></b></div>
Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com1tag:blogger.com,1999:blog-7902573073356126535.post-9673588554192525452013-04-04T15:17:00.002-07:002013-04-04T15:17:54.039-07:00Looking Good :)<span style="font-size: large;">I went to my Integrative Medicine Doctor this week and had him test me for EVERYTHING! Everything I always tested positive for last January 2012. </span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">Good News: My Lyme is still gone- non active! I couldn't be happier!! Hoping to stay in remission forever! He said that if it did come back he is confident that my immune system would be able to fight it off. Yay! All negative for the co-infections I had, Parasites, metals, mold! I got a good report.</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">The only thing that he did find was that I had an Iodine Deficiency? I was very confused about that. I did look it up ( Google) and read about it. It seems that it is common but you should take some supplements if you are on it.</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">So as of right now I am taking supplements for that and Vitamin D. THAT IS IT! I feel like I went from 30 pills a day to 2.. crazy!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">The Spring is here and Summer is near.. Please continue to check yourself, your children and pets for Ticks. DAILY! This disease can change your life in a flash. Also, remember, May is Lyme Awareness month. Get those green light bulbs for your porch, wear some lime green clothes and nail polish, educate others!</span><br />
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<span style="font-size: large;">Let's Raise Awareness!!!</span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-8206726415015894282013-03-13T07:17:00.002-07:002013-03-13T07:17:22.044-07:001 year since my 2nd round of IV!<span style="font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%;">I am so sorry that I have not been writing on here since the
end of December but since then I have seen my Doctors. I have been to both my
LLMD and my Integrative Medicine Dr. and I have been testing negative to active
Lyme!! I have been negative since June 2012ā¦ so I couldnāt be happier.<o:p></o:p></span><br />
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<span style="font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%;"><span style="mso-spacerun: yes;"> </span>In January 2013 I saw
them both and here were my results: <span style="mso-spacerun: yes;"> </span></span><span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">When I first started in January 2012 my
c6peptide number was at 1.88(anything above .91 means that you have active Lyme
in your system). My number now is at .62 so that was great news to hear!!!<o:p></o:p></span></div>
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<span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";">But
my CD57 number was too low... Low for this can be bad. The number should be
between 60 and 360. My number is 27. So what this means is that my immune
system is very compromised. </span><span class="usercontent"><span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN;"><span style="mso-spacerun: yes;"> </span>The other
thing about this number being low is that I could relapse with the Lyme. I have
been getting pretty sick a lot. I am actually home now with Strep Throat and
have had a 102 fever on and off for 4 days. Overall, I am just hoping that my
body can continue to fight this. With all the supplements and vitamins that I
have been putting into my body I will only be able to continue to get stronger.
Today- March 13 I am 9 months in remission!! </span></span><span class="usercontent"><span lang="EN" style="color: #333333; font-family: Wingdings; font-size: 12pt; line-height: 115%; mso-ansi-language: EN; mso-ascii-font-family: Georgia; mso-char-type: symbol; mso-hansi-font-family: Georgia; mso-symbol-font-family: Wingdings;"><span style="mso-char-type: symbol; mso-symbol-font-family: Wingdings;">J</span></span></span><span class="usercontent"><span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN;"><o:p></o:p></span></span></div>
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<span class="usercontent"><span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN;">Today- March 13 is exactly one year from when I started my second long term
round of IV and Oral Antibiotics. If you look back on this day on my blog you
can read how I was dealing with my active Lyme then- it was not good. I have
really come a long way and I am forever grateful for that. </span></span><span class="textexposedshow2"><span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%; mso-ansi-language: EN;">thing about
this number being low is that it means I could relapse with the Lyme. I have
been getting sick a lot. I am hoping that my body can continue to fight this
Lyme and once I put some supplants in me that my immune system will get
stronger. I do feel week. So overall still happy - NO ACTIVE Lyme!! 7 months in
remission!!!! thing about this number being low is that it means I could
relapse with the Lyme. I have been getting sick a lot. I am hoping that my body
can continue to fight this Lyme and once I put some supplants in me that my
immune system will get stronger. I do feel week. So overall still happy - NO
ACTIVE Lyme!! 7 months in remission!!!! Thanks for all of the support</span></span><span style="font-family: "Georgia","serif"; font-size: 12pt; line-height: 115%;"><o:p></o:p></span></div>
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<span style="font-family: "Georgia","serif"; font-size: 12pt;">What am I still dealing with? Well, I still have
numbness/coldness on my right side. It has gotten better but it is still there.
Nerve damage takes forever to heal so I am just trying to be patient. I have
been experiencing really bad hip pain though and other joint pains. I have had
manipulation done to help and I also continue to go to my wellness program at
my PT. But from everything that I had if I am left with hip pain and numbness I
would say I am lucky.<o:p></o:p></span></div>
<br />
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<span style="font-family: "Georgia","serif"; font-size: 12pt;"><span style="mso-spacerun: yes;"> </span>I will continue to
write on here and I am sorry that I have not been for a few months. I do update
on my Facebook page daily/weekly you can friend me on Facebook at : Samanthas
Lymelife. Or you can always email me at <a href="mailto:Samanthadawn1211@gmail.com"><span style="color: blue;">Samanthadawn1211@gmail.com</span></a>. Thanks
for all of your support and letās continue to raise awareness.<o:p></o:p></span></div>
<br />
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<span style="font-family: "Georgia","serif"; font-size: 12pt;"><o:p> </o:p></span><span style="font-family: "Georgia","serif"; font-size: 12pt;">** May is Lyme Disease Awareness Month**</span><span lang="EN" style="color: #333333; display: none; font-family: "Georgia","serif"; font-size: 12pt; mso-ansi-language: EN; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman"; mso-hide: all;">thing about this number being
low is that it means I could relapse with the Lyme. I have been getting sick a
lot. I am hoping that my body can continue to fight this Lyme and once I put
some supplants in me that my immune system will get stronger. I do feel week.
So overall still happy - NO ACTIVE Lyme!! 7 months in remission!!!!</span><span lang="EN" style="color: #333333; font-family: "Georgia","serif"; font-size: 12pt; mso-ansi-language: EN; mso-bidi-font-family: "Times New Roman"; mso-fareast-font-family: "Times New Roman";"><o:p></o:p></span></div>
Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com3tag:blogger.com,1999:blog-7902573073356126535.post-27491955758106315642012-12-28T18:54:00.003-08:002012-12-28T18:54:53.340-08:00looking forward to 2013 :)<span style="font-size: large;">I hope all of my lymies and others had a wonderful holiday!!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">I can't help but think about this past year of my life.. WOW!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">a year ago from today I was in so much pain, not walking, numb, and so confused as to why my body was like this. So confused as to why I couldn't find a doctor to treat CHRONIC Lyme. It was around this time with the help of my Dad that we found 2 Lyme doctors. A LLMD ( Lyme Literate Medical Dr) and an Integrative Medicine Dr. My first visit to them both was in January 2012...</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">So here we are 3 picclines, a dozen natural medications, and quite a view oral antibiotics later - on top of Physical Therapy and lots of rest and prayer ( read my entire blog for a list of all medications)... but a year later...</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">I am a full time special education teacher who can: run errands, WALK, drive, plan parties, attend parties, stay out late and wake up early the next morning, live my life again with my husband! So I am telling you all of this for those of you who are where I was last year- this time last year I was searching for blogs, for doctors, for HELP!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">I will tell you this... I will always have Lyme Disease and I am OK with that. It is now a part of me and it has made me the person that I am today. I know that I will never let it win and take over my body again. EVER! If you are someone fighting this disease now you need to stay positive!! POSITIVE POSITIVE POSITIVE! I know with me telling my body out loud that we will fight this and me believing that I will be better has helped me get better. You need to surround yourself with people who will be by your side and fight for you- surround yourself with love- it helps!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">Please email me if you ever need to talk or need a friend for help or to listen. </span><a href="mailto:Samanthadawn1211@gmail.com"><span style="font-size: large;">Samanthadawn1211@gmail.com</span></a><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">Looking forward to the new year so that I can put all of the pain behind me. I know good things will happen to me this year!</span><br />
<span style="font-size: large;"></span><br />
<span style="font-size: large;">Praying and wishing all of my Lymies a Happy and HEALTHY 2013!! xo</span><br />
Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com3tag:blogger.com,1999:blog-7902573073356126535.post-13815213408549561002012-11-26T18:10:00.003-08:002013-03-13T07:18:41.059-07:00Me Now- 5 months in remission!!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvzfX16-KODe8bGet90nujk9LVLr_b4FXyX1PpfCQ5wAB_ikOoYnBH0a211of4kqepXddaT6_adcxLiY2aE6CcfcWhaBHbwQHaWRwap04vpZjKc4S4lQg1UXgxSCx45QWEAMPDcEPY9sA_/s1600/cockrell+wedding.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvzfX16-KODe8bGet90nujk9LVLr_b4FXyX1PpfCQ5wAB_ikOoYnBH0a211of4kqepXddaT6_adcxLiY2aE6CcfcWhaBHbwQHaWRwap04vpZjKc4S4lQg1UXgxSCx45QWEAMPDcEPY9sA_/s320/cockrell+wedding.JPG" width="320" /></a></div>
<span style="font-size: large;">Me and my husband (my heart) I wanted to post pictures of what I look like now that I have been in remisson.. Out at weddings, dressed up and dancing!! I hope this can give hope to others who were pretty much in bed and unable to walk.. Keep Fighting!!! Let's Raise Awareness!</span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgh-N9OSFecQ7hEZfOHOdtk_D5nwUUT_TQh2foELnejuugoPjCI7TkYBr9LLU_YtkKBDHz3hitQN8gLE7hRxcTjdiRKfN0IWnPHblMFO689lbwzXff7uyPCNhF0HafjUQou4pQmpM2O_VSC/s1600/goodwedding.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgh-N9OSFecQ7hEZfOHOdtk_D5nwUUT_TQh2foELnejuugoPjCI7TkYBr9LLU_YtkKBDHz3hitQN8gLE7hRxcTjdiRKfN0IWnPHblMFO689lbwzXff7uyPCNhF0HafjUQou4pQmpM2O_VSC/s320/goodwedding.JPG" width="320" /></a></div>
<br />Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-73003634776932599042012-11-26T17:54:00.005-08:002012-11-26T17:54:53.956-08:00thankful.....
<br />
<div class="MsoNoSpacing" style="margin: 0in 0in 0pt;">
<span><span style="font-family: Calibri;"><span style="font-size: large;">It has been awhile since I
have written on my blog. Since September I have been super busy with weddings,
bridal showers, parties, teaching.. etc.. But you know what... IT IS A GOOD
THING! Last year at this time I was trying to walk and use my right arm again,
read a book, and control my pain. So I will take the stress of being busy any
day of the week... it actually feels good to be part of something all the time.
Though I am mentally and physically exhausted, I would say that it is good for
me- if that makes senseā¦<o:p></o:p></span></span></span></div>
<span style="font-size: large;">
</span><br />
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<span><o:p><span style="font-family: Calibri; font-size: large;"> </span></o:p></span></div>
<span><span style="font-family: Calibri;"><span style="font-size: large;">So how am I doing?? Well,
compared to last year I would say that I am 85% better!! My brain has been a lot
clearer over the past few months. I am sure working is helping thatā¦ My right leg
and arm- consonantly numb... I guess it will always be?? It is has been numb
and ice cold for over a year now. It is uncomfortable but not painful just
annoying really. But... my back is terrible. I just recently had an MRI done.
They found degenerated disc disease prominently in my L4 & L5 along with SI
instability.<span style="mso-spacerun: yes;"> </span>I continue to go to PT (I have
been with my PT, Mike, since last September- he is great and is always helping
me with what I need.. all the PTās there do!!) every time I go I need my hip
adjusted. Mike things this whole back thing is mechanical for how I walked and
sat for so long. So I am hoping with all of my PT and exercises the pain will
eventually go away. So we will see!<o:p></o:p></span></span></span><br />
<span style="font-size: large;">
</span><br />
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<span><o:p><span style="font-family: Calibri; font-size: large;"> </span></o:p></span><span><span style="font-family: Calibri;"><span style="font-size: large;">As for my Lymeā¦ this month
I have been 5 months LYME FREE!! (Well for active Lyme of course- I will always
have Chronic Lyme Disease.) I am truly so happy that my body is continuing to
fight this battle without tons of antibiotics! I continue to take supplements
and vitamins but that is it!! I still canāt believe how much stuff I was taking
at one time. I do not go back to my LLMD until January where I will get my CD57
number and PCR number... I think I may even get a new western blot test done.
So here is to hoping all stays well.<o:p></o:p></span></span></span></div>
<span style="font-size: large;">
</span><br />
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<span><o:p><span style="font-family: Calibri; font-size: large;"> </span></o:p></span></div>
<span><span style="font-family: Calibri;"><span style="font-size: large;">I continue to have hope
and pray for myself and all the other people suffering with Lyme. Am I the same
girl that I was prior to Lyme? NO. I am not that girl... But I am the new me
and I like this me too. I definitely have a different perspective on life and I
am grateful that I am walking, driving, teaching and being able to hang out. I
just may get tired faster or have joint pain.. but hey.. I will take that over
last year any day.. I promise to not stay away so long like last time. I hope
everyone had a wonderful Thanksgiving and thought about what they were thankful
for.. I know I sure did. <o:p></o:p></span></span></span><br />
<span style="font-size: large;">
</span><br />
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<span><o:p><span style="font-family: Calibri; font-size: large;"> </span></o:p></span></div>
<span style="font-size: 14pt;"><span style="font-family: Calibri;"><span style="font-size: large;">Letās Raise Awareness!<o:p></o:p></span></span></span><br />
Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-11374623910265330462012-10-01T17:09:00.004-07:002012-10-01T17:09:44.280-07:00staying strong!!!
<br />
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<span style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ascii-theme-font: major-latin; mso-hansi-theme-font: major-latin;">1
month of work down!!! <o:p></o:p></span></div>
<br />
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<span style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ascii-theme-font: major-latin; mso-hansi-theme-font: major-latin;">I
really had a thought that I may never go back to teaching again.. I mean it is
hard to believe where I was last year at this time to where I am this year. I
feel so very blessed to have my life back. It may not be the same life I had
before but I am happy and overly blessed with the life that I have now.<o:p></o:p></span></div>
<br />
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<span style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ascii-theme-font: major-latin; mso-hansi-theme-font: major-latin;">So..
I went back to teaching in September. Not only did I do that but I was a Matron
of Honor in my best friendās wedding, and I planned my little sisterās bridal
shower. I also learned my new teaching job and went to school daily and came
home to either going to Physical Therapy Wellness program or to a Drs. Appointment.
Man- and I exhausted!! But I am so happy I was able to do it ALL!!!!<o:p></o:p></span></div>
<br />
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<span style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ascii-theme-font: major-latin; mso-hansi-theme-font: major-latin;">So
I went to my LLMD last week and here are my results:</span><span class="usercontent"><span lang="EN" style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ansi-language: EN; mso-ascii-theme-font: major-latin; mso-bidi-font-family: Tahoma; mso-hansi-theme-font: major-latin;"> Eliza c6 peptide
is NEGATIVE!! Yay! This is month 3 in a<span style="mso-spacerun: yes;">
</span>row that it has been negative and has been going down. My number is
0.62!! Went down 20 points since last month- YAY! Thyroid is also back in
normal range!!! Such great news!<o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span class="usercontent"><span lang="EN" style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ansi-language: EN; mso-ascii-theme-font: major-latin; mso-bidi-font-family: Tahoma; mso-hansi-theme-font: major-latin;">So, my CD57 is still low- it is at 35. It needs to be 60... This number
means good chance of relapse (but I am staying positive!!) <o:p></o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span class="usercontent"><span lang="EN" style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ansi-language: EN; mso-ascii-theme-font: major-latin; mso-bidi-font-family: Tahoma; mso-hansi-theme-font: major-latin;"><o:p> </o:p></span></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 10pt;">
<span class="usercontent"><span lang="EN" style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ansi-language: EN; mso-ascii-theme-font: major-latin; mso-bidi-font-family: Tahoma; mso-hansi-theme-font: major-latin;">My vitamin D is still only 23 so I am still on the super D supplements..
along with overs.. But Overall.. I'm happy with these results for now and I
continue to kick Lyme Butt!!!! </span></span><span style="font-family: "Cambria","serif"; font-size: 16pt; line-height: 115%; mso-ascii-theme-font: major-latin; mso-hansi-theme-font: major-latin;"><o:p></o:p></span></div>
Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-60670299630711643532012-09-09T12:50:00.003-07:002012-09-09T12:54:56.040-07:00back to work I go :)<span style="font-size: large;">So.. Back to teaching I go- Yay! I made it through my first week- and boy am I exhausted. But, in a good way. I feel like I am part of society again. I love teaching- I couldn't have picked a better profession for myself. When I missed all last year I was so upset because I wasn't sure if I was ever going to be able to teach again. But here I am- back to school!</span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWnMaSl7X5yT1GwiNolYfTHSfnvvBaM92QGsBllbZ5r5PRRwv8FdsbC9UQGy9HF__OuD0dONeFp1QaFKtz4svtnEzWYEbwogovABzRqO5HzEHsJHPuhe0r6FqxkqHfTCd9BVYyXsvaGsGT/s1600/photo+(2).JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWnMaSl7X5yT1GwiNolYfTHSfnvvBaM92QGsBllbZ5r5PRRwv8FdsbC9UQGy9HF__OuD0dONeFp1QaFKtz4svtnEzWYEbwogovABzRqO5HzEHsJHPuhe0r6FqxkqHfTCd9BVYyXsvaGsGT/s320/photo+(2).JPG" width="320" /></a><span style="font-size: large;"><br /></span>
<span style="font-size: large;">It has been hard because after work I then have to go to either Wellness PT program or to a Doctor's appointment. This week I have bloodwork before work. So it is just a lot to do and for my body to get used to. I am hoping being back to work is going to help me in the long run. I REFUSE to let this Lyme take over my life!!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I am continuing with all of my supplements, mycroplasma series ( it is so yucky) & the celebrex for joint pain. This weekend my entire body has been in pain. My legs- worst ever! I am thinking it is my body just in shock that I am on the go so much and not just laying in my bed or on the couch. This week in PT my hip/back have been hurting so much. My PT's have helped adjusting me and I have been doing stim/ice daily. When will all this be over? I am hoping someday soon. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Overall- am I great? NO.. but I am working hard to live my life and dealing with the cards that I have been dealt. Little by little I feel better so I guess only time will tell. Thank you for all of your prayers and support.</span><br />
<br />
<br />
<br />Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-43310800473986634582012-08-30T16:03:00.001-07:002012-08-30T16:03:50.257-07:00A Year Later<br />
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">A Year
laterā¦.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;"><br /></span></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">So tomorrow
( August 31) is exactly 1 year since I was admitted into Jefferson University
Hospital- Philadelphia, PA. That is a memory I wish I could forget but one I
will always remember- It made me the person that I am today.. A Lyme Warrior!<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">That night I
could barely walk, in so much pain, and so weak. Spinal tap, blood work, and
IVs.. Which then led to a Piccline.. or 3
of antibiotics. I was scared and unsure how I was ever going to be ā meā
again. Crying that school was starting
this week and I need to get better to get back to my students.. little did I
know I wouldnāt be teaching my students this year.. but teaching myself. Teaching myself to be patient and to walk and
use the right side of my body again. To teach my brain to comprehend and be
able to read. To teach myself- to appreciate all that I had in life because in
the blink of an eye your plans and life could change just like that.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">So where am
I a year laterā¦.<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">Going back
to work!! Yay! I did have to step away from my preschool disabled job this year
due to the physical aspect as well and the germs ( my immune system is not that
great).. but I am still teaching- and that is all that matters!!<o:p></o:p></span></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">Overall my
last 2 doctorsā visits have not been great but could definitely be worse. My CD 57 number was 37 which means I could relapse..
COULD is the word that I am holding on to. I am trying to stay as positive as I
can! <o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">I had 2 opinions
and both were the same outcome. My vitamin D level is at 22 ( needs to be at
30). I am surprised so low b/c I do drink milk and am in the sun.. a lot! SO I
need to start those supplements. Also, My thyroid numbers arenāt good either. I
am trying the natural approach with that before starting that medicine. I
personally think that all of this is messed up b/c of all the medicine I have
been on and what my body has been through.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">I have also
been going to an ENT due to ear problems. We found out that I have severe
pressure in my right ear and hearing loss ( a hearing test was preformed). I
went to my integrative medicine dr. today and he said that my mycoplasma
coinfection was back.. great! Or maybe it never went away b/c through the
muscle test it is in my ear. But anyway.. its here. The weird part about this
all is that my very first symptom (my ear) last summer was this ear and this
ear pain.. Maybe the mycoplasma was my first co-infection and is the last to
go? I am starting the series medicine now so we will see in a few weeks if it
is gone.<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">Physically..
my walking has been great! I am working out every day with my PT in the
wellness program. Lifting 6 lb weights and walking on the TREDMILL at speed
3.2- this is a huge deal for me! I am able to ride my bike and drive my car (
locally). The first time I drove to Target by myself I didnāt want to leave-
the independence felt so good! So- is my leg back to normal? Not yet. As, I am sitting here my leg feels like it is
ice cold and numb- a feeling I guess I will have for a while due to the nerve damage.
My leg and arm fall asleep a few times throughout the day.. But I am learning
to deal and just live my life with it. I
did stop the Neurotin ( my memory/concentration has been bad so wanted to see
if it had anything to do with the meds.) I am still on the Celebrex for joint
pain though. When I try to stop that- boy can I tell!! <o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">Overallā¦
just trying to live my life with my wonderful husband. My energy is not the
same as it was but I have been pushing though activities. I am learning not to
let the Lyme win. I set my alarm clock every day- make myself get up and go!. I
make sure that I go out with friends to party. Wear that makeup and cute outfit.
Go to the beach. Waverun.. swim in the ocean! ā It is always easier to lay in
bed and wear my pjs.. but I just feel I am letting the Lyme win.. and I REFUSE
to let that happen. So I am living my 28 year old life the best that I can!<o:p></o:p></span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="font-size: 16.0pt; line-height: 115%;">In closing,
as tears run down my face as I am typingā¦ I just want to say THANK YOU! THANK
YOU! THANK YOU! To God, My husband, My family, My friends, My doctors &
Therapists, My Lymies- and all of you who read and support my blog though
prayers and kind words.. Thank you. Without ALL of you- I KNOW I couldnāt have
gotten though this past year. Thank you from the bottom of my heart. Letās
Raise Awareness for Lyme Disease!!!!! <3 <o:p></o:p></span></div>
Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-19718569631958609822012-08-07T19:38:00.004-07:002012-08-07T19:38:57.355-07:00Doctors Doctors Doctors<span style="font-size: large;">So what has been going since this Piccline has been out?</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I ended up getting sick. I guess this makes sense since I was on about 5 antibiotics for months and then just stopped. I ended up having a bad sore throat and bad ear pain/pressure. I went and saw my primary doctor who thought I probably have Strep Throat or Mono. I felt so sick that I could barely get out of bed..</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I then made an appoint with my Lyme Dr to see if it was my Lyme flaring up. He thought I may have Mono too.. So I went and had the Mono blood test- good news- no mono.. but I am still sick. I also saw my integrative medicine doctor who said my Lyme was in remission but I am still fighting off metals: mercury and lead.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I then went and saw an ENT who said my Eustachian Tubes were completely blocked. He then said steroids would be the best thing to open up my ears. Us Lymies know that steroids and Lyme are NOT a good combination. But I really had no choice- I was losing my hearing and in SO much pain. I ended up taking the steroids and the ear pain did get better. I am getting allergy testing done this week. It has been about 4 weeks that I have been fighting this cold/virus and now I have a deep cough.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Overall, I think that it is just hard to fight anything right now because my immune system is so compromised. I am continuing to workout out in the wellness program, eat well, taking supplements and try to heal my body.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I did meet with my Lyme doctor who told me that my c6peptide number was low! YAY! I was at 1.60 in January and now am at negative 0.70! I had more blood work taken on July 24.. I will find out how my numbers are on August 16- please pray that my number is still low! I also got a CD57 blood test done as well. Very nervous but hopeful for good results!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I also saw my neurologist and he was super impressed with how far I have come. After talking to him I am starting to come off of my Neurotin. I just want to try to come off of as many meds as I can- but stay on all naturals because I know I can't be off of everything.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So.. how have I been doing? I still have the cold and at times still very exhausted. I am able to do many more things now but then I am tired- I need breaks and a 20-40 minute nap everyday. I did also have 1 scary episode. This Friday for about an hour and 15 minutes my leg went all completely numb and tingly on me. I had trouble walking again. I did lay down and put my tens unit on me and had to calm down because as you can imagine I was a hysterical mess. I did have workout in the wellness program extra hard that week and that morning so maybe that caused something but I do not know. Maybe because I just stopped the Neurotin? I have been fine since then but I am scared that these flare ups are going to happen. Are they always going to happen?</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I continue to think positive and kick Lyme Butt!!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Good News- Going back to teaching in September after missing a whole school year! I am so excited and so blessed to be able to live my life again! Thank you for all of your support and prayers.</span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-87764076295886347442012-07-24T09:19:00.001-07:002012-07-24T09:19:55.138-07:00Thank you<div class="text_exposed_root text_exposed" id="id_500eca6b729c42013638851">
<span style="font-size: large;">It has been a month since I have had to get driven to Harleysville every day for IV infusionā¦ I look back and I cannot believe how sick I really was! It has been 2 weeks since I have been in āPTā and I have now been driving for almost a month as well ( driving pretty locally). I am walking and starting to exercise in my wellness program! I really just wanted to give a public shout out and thank y<span class="text_exposed_hide">...</span><span class="text_exposed_show">ou to ALL who have driven me to my doctor appointments, to Harleysville (and sat with me for hours during infusion, to Physical Therapy & to run many errands. I am so blessed to have you all in my life. You are the angels that God has put on earth for me. I truly love you all!</span></span></div>
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<span class="text_exposed_show"><span style="font-size: large;"> My family: My husband- Jon, my mommy, my daddy, my step-mom, my step-dad, my mother-in-law,my Nanny, Danielle, Brittany, Jen, Bridget, & Jason. </span></span></div>
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<span class="text_exposed_show"><span style="font-size: large;">My Friends: Shannon Kelly, Lindsay Minton, Tim Keck, Amanda McCleery, Laura Murray, Nicole Casciello, Stacey Pizzo, Kelly Short, Tammy Smith, Barb Newell, Terry Ciotto, Joyce Scheller, Betsey Gallagher, Nicole Smith, Karen Bennett, Christina Warren, Colleen Jaxel, & Connie Wyld. Thank you to Collette Stabb for setting me up with rides- so sweet! Thank you so much to Rick Williams too- thank you for always being someone that I can talk to and for all of your support! <3 love to all</span></span></div>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-35155292005671426862012-07-13T17:31:00.004-07:002012-07-13T17:31:44.372-07:00Goodbye PT- Hello Wellness Program!<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">So last week was my last week of Physical Therapy. August will be 1 year since I have been in Physical Therapy! Here is a picture of me that my Physical Therapist took on my last day- he even brought in a graduation cap for me!</span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><br /><span style="font-size: large;"></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">So am I 100% better and have a perfect gait... NO.. but I am better! I am actually still going to be at the PT office still 3 days a week but instead of doing Physical Therapy, I will be doing the Wellness Program. The Wellness Program in like a medical exercise program. The Therapists will still be there to support me when needed and put me on a program but I will be more independent. :)</span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><br /><span style="font-size: large;"></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">I am still having very bad hip, knee and back pain. My hip seems to be pulling forward and it can mess up my gait even more. I think from me sitting for 5 hours a day for months and not having any use of my right side for months kind of messed up my body. So I am continuing to work those joints and muscles kind of reteach them how they are suppose to work.</span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><br /><span style="font-size: large;"></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">I am driving!!! I have been driving locally for the past few weeks!!! It feels great to run errands! I actually can't wait to run to the food store or get gas in the car.. my independence is almost back 100%!!! woohoo! I am hoping to try longer distances in the near future! </span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><br /><span style="font-size: large;"></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">So I have been off the Picc for over 3 weeks now and still feeling not that well. It turns out that I now have strep throat. I guess my immune system still has trouble fighting its battles and I will get colds easier. Just another fight to fight. </span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><br /><span style="font-size: large;"></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">I met with my integrative medicine doctor on Wednesday and the Lyme still seemed to be in remisson but my Mercury was still active so I am still fighting that off. I know it will take a while before I feel great again.. even a year- I am just being impatient I guess. I see my LLMD on the 24th!! Hoping my C6peptide result and my Western Blot result show no active Lyme!!</span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><br /><span style="font-size: large;"></span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;">I am in the process of detoxing. I am drinking lemon water like crazy, Epsom salt baths, PC pills, wheat grass cubes, organic chorella pills & organic cilantro drops. Any other detox tricks from you Lymies out there? Please share! :)</span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-3784364399114693162012-07-06T09:17:00.002-07:002012-07-06T09:17:51.575-07:00Peaceout Picc!<br />
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">Sorry I have
been MIA for a few weeks now! So many things have been going on in my life. Saying Peaceout to this PIccline!!!</span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">Soooo. The
PICC is out!! The PICC came out on Wednesday, June 20, 2012!! I am very happy
that I do not need to drive and sit for 5 hours a day now!! We did have a
Hawaiian party at infusion! It was a fun way to say goodbye to my friend. I will
truly miss the Lyme Friends that I have met. I know without their support I
would not be where I am today. I pray for you all daily and hope for us to stay
in touch! <3 <o:p></o:p></span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><o:p><span style="font-family: Calibri;"> Last Bag of Vancomycin! </span></o:p></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><o:p><span style="font-family: Calibri;"> Saying Goodbye!!!!</span></o:p></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">So, overall
since August, I had 98 Days of IV Rocephin and 70 Days of IV Vancomycin. I have
3 battlescars ( Piccline scars) and a mental scar for life. I know I will
forever be a Lyme Warrior but I am hoping this girl is in remisson.</span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;"> My third Piccline battlescar!!!</span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">How have I
been feeling? Well Physcially.. I am doing 90% better than I was last August.
No more walker, wheelchair, brace, Tensā¦ ALL me! My gait is still off a little
but not as bad as it was. I am having back/hip/knee pain on my right side. I
knew I would have some problems b/c think about it? I sat for almost a year and
when I did walk all of my weight was on my left side and my gait was always
off. So I am not trying to get my body realigned. My hip and back are so bad.
My PT has to adjust my hip every visit. My hip pulls forward causing me to have
back pain. I do hip exercises daily to help the hip stay in place. I will need
to keep an eye on this incase I need to see an orthopedic dr.<o:p></o:p></span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">Mentally.. I
have some good and bad days. I still have headaches and dizziness as well as
ear pain. Also, at times I have confusion. I forgot how to wrap a present! I
was staring at a box and wrapping paper-it was really scary how I forgot how to
do this.<o:p></o:p></span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">I am in bed
sometimes and it really stinks. I feel that once I have energy and do
something.. having a really good day. The next day I am bedridden paying for
the day before. I guess I need to understand that just because my PICC is out I
am not 100% healed. I have learned it may take up to 6 months-1 year to really
feel good again. I am slowly learning this. <o:p></o:p></span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">So overall I
am just taking it easy. I am no longer on any antibiotics but I am on many
supplements and Celebrex and Neurotin. I am also starting to detox. I do meet
with my integrative medicine Dr. next week and my LLMD on the 24<sup>th</sup>
of July. I am hoping I do not need to be put back on oral antibiotics but I
guess we will seeā¦.<o:p></o:p></span></span></div>
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<span style="font-size: 16pt; line-height: 115%;"><span style="font-family: Calibri;">I am looking
forward to living my life again and feeling like āmeā again.. I am praying for
the day the I wake up and feel 100%!! Please friend me on FB at Samanthas
LymeLife. I update that daily </span></span><span style="font-family: Wingdings; font-size: 16pt; line-height: 115%; mso-ascii-font-family: Calibri; mso-ascii-theme-font: minor-latin; mso-char-type: symbol; mso-hansi-font-family: Calibri; mso-hansi-theme-font: minor-latin; mso-symbol-font-family: Wingdings;"><span style="mso-char-type: symbol; mso-symbol-font-family: Wingdings;">J</span></span><span style="font-size: 16pt; line-height: 115%;"><o:p></o:p></span></div>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-73964991768202391162012-06-28T18:33:00.001-07:002012-06-28T18:33:03.515-07:00i am runninnnggggg<div class="separator" style="clear: both; text-align: center;">
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<span style="font-size: large;">Hi all. I am sorry that I haven't posted in the past few weeks. I have had so much going on... and Yes, my Piccline is out! yay!!! I will post about that this weekend. Here is a video of me running in Physical Therapy last week... my gait is still off and when I run my right leg turns in a little. I am having back and hip problems and my knee bothers me as well. I am SOO happy that I am walking that I will deal with the pain. :) I feel as if I almost have my life back... I am about 80-85% there!! :)</span><br />
<span id="goog_473181787"></span><span id="goog_473181788"></span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-18187571114433467882012-06-13T19:32:00.004-07:002012-06-13T19:32:37.759-07:00REMISSION???!!!!<br />
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">So I got some great news todayā¦ My Piccline is coming out
next Wednesday, June 20<sup>th</sup>!!
As I mentioned on my previous post my 60 days on IV Rcocephin and IV
Vancomycin was on Wednesday, June 6. After talking with my LLMD he wanted to
extend me 30 more days on intravenous meds. His reason being that I am not 100%
āmeā again. Yes, I still have headaches, dizziness (which causes me to be nauseous),
fatigue, joint pain, & neuropathy.. but I have definitely made
improvements! I am now walking on my own, started reading books again, on the
computer more, have better conversations, able to plan events.. etc. <o:p></o:p></span></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">I feel that part of me being sick has to do with the
medicines that I am on. I was on 28 days of IV antibiotics in Aug/Sept. then on
70 days from March until present.. that is almost 100 days on IV antibiotics.
On top on the IV meds. I am on oral azithromycin, Ceftin, Flaygl ( then
switched to Tindamax), Duflucan, Neurotin, Celebrex, asprin, Samento, Banderyol..Plus
many supplements. Overall, I personally think that my body needs a break. I
have had blood clots, phlebitis and just want this picc out! Also, who knows
the long term effects that my body may have from being on all of these
antibiotics? I do have blood work done every Tuesday- overall everything comes
back great! But sometimes I have had low red blood cells, high white blood
cells.. overall it is just scary that we have to take all of these meds to get
better but it could be damaging parts of our body. There is not one specific
treatment plan that everyone should follow for Lyme Disease- everyone is
different and should have different plans depending on their symptoms. Some
people many only need 28 days (which I know that MOST need more- especially for
Chronic Lyme) and I think every patient needs to be on a concoction of medications
for to get to remission. I am grateful for the doctors that I have found āthey were
very aggressive!<o:p></o:p></span></div>
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<div class="MsoNormal">
<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">So today I also met with my integrative medicine doctor.. and
this was the FIRST time since I started going to him that he found that ALL my
co-infections and my Lyme were cleared.. so that means he found that I am in REMISSION!!!
Yay!! Finally!!!! It was wonderful news!!! I am actually in shock- b/c I do not
feel 100%.. <o:p></o:p></span></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">100%??? So after talking to my LLMD and my integrative medicine
doctor it will take about 1-6 months for me to really see a difference. Once I
am off these abx I will probably feel like poop and may get sick again.. Well,
think about it.. my body is so use to being on abx that it has to learn to
fight for itself again. I have been working on building up my immune system so
hopefully it will pick up right awayā¦ only time will tell.<o:p></o:p></span></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">So.. here is goesā¦ Next Wednesday we will see if I kicked
this Lyme to the curb! Will I be ācuredā sadly, NO. I have Chronic Lyme Meningitis.. FOREVERā¦ I
will be in āremissionā Could the Lyme become active again? Oh yes.. so what can
I do to hopefully prevent this? I am going to start detoxing next week by
taking pills, baths, drinks.. we will see. Also, eating healthy and exercising.
Now that I am able to walk somewhat again.. I need to push myself. I can do itāI
know it!<o:p></o:p></span></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">Sadly, right now I have had the worst back pain, hip pain,
pelvis pain. I found that since my body was at rest for so long and now I am
walking again my pelvis is off alignment and it is causing pain. I am going to
talk to my PT tomorrow to discuss going to a chiropractor. This pain is
terrible and is not helping the other pain that I am havingā¦ so we will see.<o:p></o:p></span></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">So I am going to be positive.. stopping antibiotics and
helping my body heal naturally.. Hopefully stopping sooner than later will be a
good thing for me.. Prayers are welcomed! I am hoping to go back to teaching preschool
disabled in the September- I miss my class, I miss my lifeā¦ here is to my new
life & being grateful for the good days and dealing with the flare ups.. I will
be patient & have accepted and that this is my new life- I hope all my
family/friends can accept it and be patient too.. Thank you for ALL of your support.. I am
blessed <3 </span><o:p></o:p></div>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-48636741641642461882012-06-05T15:38:00.000-07:002012-06-05T15:38:03.791-07:00thank goodness Tindamax is done today!!<div class="separator" style="clear: both; text-align: center;">
<span style="font-size: large;"><b><br />Didn't feel too well to type so here is a blog video of me today. Thanks for all of your support and Let's Raise Awareness!! :)</b></span></div>
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<br /><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dyS8PIP6KEY_b87SX-CcF8se1m2sabgkHneNmMFBzyS_N0JkG1gsVqUMvPYnkNotZZQmmFSM7ieV_DWG-inTQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-37511804188010261582012-05-29T16:29:00.004-07:002012-05-29T16:29:53.136-07:00feeling better.. but am I?<br />
<span style="font-size: large;"><b>So, I am still not sure of the extension. I will have been on IV antibiotics for a total of 90 days. I just think that I need to give my body a rest and see what it can fight on its own. I think I will stick with bee venom and naturals but still unsure about the IV antibiotics.</b></span><br />
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<span style="font-size: large;"><b>I am doing so much better with my walking though!! I walked home 4 blocks from beach, walked a little on the boardwalk, and walked on the beach all with NO assistive device! Yes, my gait is still off but I am doing much much better! I tried walking on treadmill today and could only do speed .5ā¦ it is tough walking on a moving surface!! But I have been walking and practicing dribbling a ball at the same time and am doing OK but it is good for me to multitask and get my brain moving! </b></span><br />
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<span style="font-size: large;"><b>I do feel better but still not me. I know it wonāt happen over night but in August I will be fighting this (well since I have been diagnosed) for a year.. So I am hoping in August I will start to feel a little better. </b></span><br />
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<span style="font-size: large;"><b>This Friday, my old high school, Clearview Regional HS, will be doing an interview on me for Lyme Disease. I am happy that I can help raise awareness to the high school students. It will be posted on the school news as well as the local channel.. Letās Raise Awareness!! </b></span><br />
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<br /></div>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com1tag:blogger.com,1999:blog-7902573073356126535.post-53644429644615846942012-05-22T17:21:00.005-07:002012-05-22T17:21:54.839-07:00Extensionā¦grrrr.. uggggghhh<br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>So I am around day 50 on my IV treatment and I am suppose to have 60 days total of rocephin and vancomycinā¦ am I feeling better- yes, I am. I would say that I have better than I did 2 months ago. Can I pretty much walk independently- Yes! That is the most positive thing happening.. but how do I feel.. POOPY!</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b><br /></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>I still feel very fatigued, brain fog, dizziness/headaches, ear pain. Is any of that better- Some days.. definitely! But most days.. no. I will say that I am having some weekends when I feel GREAT! This past weekend I went to a craft fair, the Phillies game, a friends house. It was amazing to be able to go out and not be a bump on a log on the couch.</b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>I am VERY thankful and grateful to be able to walk again but I also want to be feeling well too. I am on the Tindamax- two 500mg daily.. on top of everything else. As well as the Samento and Banderol Drops. I would say this week I am just tired and my body aches and my head is the worst.. I actually have been writing this for a while and have to keep breaking b/c the computer screen is too much for me to handle.</b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>So.. I meet with my LLMD every week (well sometimes the PA at the LLMD office) they were asking me about my symptoms and allā¦ they said I may need to be extended! I am not looking forward to sitting at the doctors everyday for infusion any longer!! This is my 2nd round of IV antibiotics but the first time I only had 28 days. I just wish I knew what I needed to do.. is 2 weeks enough extension.?? I even heard 30 days!?? NOOO! I just think I want to see if my body can fight this nasty disease off on its own. </b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>Any other Lymies: Should I try azithromycin IV?? I do take it orally? Should I stay with rocephin and vancomycin? Just looking for some opinions.</b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b><br /></b></span><br />
<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>Tomorrow, I meet with my integrative medicine doctor and get the bee venom shots and acupunctureā¦ I wonder if I can just continue treatment through holistic medicine. Hoping I hear good news tomorrow.. I am just feeling pretty yucky but again super happy about my walking!</b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>So today in PT- the therapist, Steph, had me dribble a basketball and walk at the same time. Wow! I never realized how much I am telling my brain āheal,tow,heal,toeā as I am walking. As soon as I had to concentrate on the ball dibbling my foot began to drag. I was so upset. I stopped and we practiced heal/toe walks and then I tried again and it was better.. but yes- I had to say aloud heal/toe. It is just crazy how your brain works. Before this disease I would never have to think about what I was doing physically. Now, The whole time I am walking I have to repeat in my head what to do- it is just crazy what a tick can do!</b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: large;"><b>I am determined to be running and dribbling one day.. it will happen ;) I will keep you posed</b></span><br />
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<br /></div>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-82742948510565090372012-05-13T19:28:00.003-07:002012-05-13T19:28:41.147-07:00walkingggggg :)<div class="separator" style="clear: both; text-align: center;">
<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dx3CaQRKiYFcNEhpe7bTPCdwIucG1QLNZfX5GSaEJmCcA38SVKDX-oFEEEBFYs7MItDSA48ag_5OhGw-HN0BA' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"><b>Playing Twister in PT. This is something that I would have not even been close to be able to do.. bending down, getting up, listening to where my hands and feet go and being able to follow through.. This is such a big deal to me and hopefully a good sign that I will be back to teaching by September!! :)</b></span><br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dzvctPv1E5YsexmXp4gKq73xdr7qNLEPjJbt5HP0PnyrD65MrX4maaER6tW9XCiQAKoOg9ZU56ydSqT1zFGKQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
<span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"><b>No Tens, No Brace.. yay!!! I have been able to walk short distances with out either (into resturants, stores, doctors office, etc.) I have been using my Tens to walk long distances ( shopping, walking at the park or boardwalk).. I think that by the time summer comes.. I will be walking with nothing!!! I do need to wear sneakers or flats- flip flops are just so much work right now... but hey.. I will talk it :)</b></span><br />
<br />Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0tag:blogger.com,1999:blog-7902573073356126535.post-20033188273103623482012-05-13T18:27:00.002-07:002012-05-13T18:27:18.683-07:00May is Lyme Disease Awareness Month<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOaQDMsGtECj0WrTovRNo1qjmU2DthNp607CKD1owU1V73L8VLy1PX3BZNvVqHspNW_ypIo-erq12_pL3IpJIsbroaR8-OdjEB2t91PtONmUWldV8T4-mAwF38qYrFjY2WfIRq8VVACphM/s1600/IMG_1477.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="238" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOaQDMsGtECj0WrTovRNo1qjmU2DthNp607CKD1owU1V73L8VLy1PX3BZNvVqHspNW_ypIo-erq12_pL3IpJIsbroaR8-OdjEB2t91PtONmUWldV8T4-mAwF38qYrFjY2WfIRq8VVACphM/s320/IMG_1477.JPG" width="320" /></a></div>
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<span style="font-size: large;">Me and My Lymies getting our treatment and wearing our lime green to help raise Lyme Disease Awareness!!!</span>Samanthahttp://www.blogger.com/profile/00008800628664717265noreply@blogger.com0